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Southeastern Ontario Portal for Advance Care Planning [ACP] & Health Care Consent [HCC]
PROJECT DESCRIPTION
Advance Care Planning (ACP) is a process which gives someone the opportunity to consider and discuss with family and friends their wishes and desires concerning future personal care options. This can be helpful in guiding their Substitute Decision Maker (SDM) if they ever become incapable of providing consent for health or personal care decisions themselves. The Health Care Consent Act in Ontario requires Health Care Providers to obtain informed consent in order to give or withdraw treatment and ensures a process by which everyone in Ontario has access to a Substitute Decision Maker.
The Centre for Studies in Aging & Health developed a bilingual online portal to feature Advance Care Planning (ACP) and Health Care Consent (HCC) information that is important to Health Care Providers and people living in Ontario. The resources housed on that portal are now linked to on this project description page.
A number of Ontario specific educational resources were developed and disseminated as a lead member of the South East LHIN Advance Care Planning & Health Care Consent Working group. To learn more about this group you may read the position paper here. For a summary of the project view the poster here.
If you have additional Ontario specific ACP and HCC resources you would like added to this webpage please send them to info@sagelink.ca for consideration.
ACP & HCC RESOURCES FOR SENIORS, FAMILY & CAREGIVERS
This section contains a comprehensive collection of resources focusing on Advance Care Planning [ACP] and Health Care Consent [HCC] that are pertinent to seniors, families and caregivers in Ontario. These resources are generally informed by research studies, externally reviewed by experts and then adopted as a part of a framework to support health care providers in guiding patients through the Advance Care Planning process.
Resources available include Decision Supports, Handbooks & Guides, Handouts, Presentations, Publications, Videos and Websites.
DECISION SUPPORTS
| Cardio-Pulmonary Resuscitation (CPR): A Decision Aid for Patients and Their Families This CPR decision aid was developed by Dr.’s Daren Heyland and Chris Frank and provides answers to frequently asked questions along with supporting statistical evidence. 8 pages. Last reviewed June 2019. |
| Long Term Tube Feeding: A Guide for Patients and Substitute Decision Makers This guide is intended to provide the necessary information for patients and Substitute Decision Makers to make informed decisions regarding tube feeding. It reviews commonly asked questions and easy to understand answers. 8 pages. Last reviewed June 2019. |
HANDBOOKS & GUIDES
| Advance Care Planning Ontario – Resources for Families – 5 Steps of Advance Care Planning This online resource describes the process of starting Advance Care Planning |
| Advance Care Planning Ontario – Online Workbook for Families This english online Advance Care Planning workbook is intended for personal use for Ontario residents. Note that once your family has completed the online workbook, there is an option to request a print version. |
| Ontario Power of Attorney for Personal Care This pdf booklet contains step by step instructions for completing the enclosed Power of Attorney for Personal Care form. 2 pages. Last reviewed June 2019. |
HANDOUTS
| Advance Care Planning – Ontario – Summary – Health Care Consent Act This handout describes what Advance Care Planning is in Ontario as well as the role of the Substitute Decision Maker and Health Practitioners in regards to Health Care Consent. 1 page. Last reviewed June 2019. |
| Advance Care Planning and Health Care Consent in Ontario: Common Questions and Answers This pdf handout is intended as a helpful resource to address commonly asked questions and answers related to Advance Care Planning and Health Care Consent in Ontario. A number of relevant resources are linked to in order to provide more in depth information. 5 pages. Last reviewed June 2019. |
| Important Things to Know About Advance Care Planning (ACP) & Health Care Consent (HCC) in Ontario This handout provides an overview of the Advance Care Planning process in Ontario as well as the hierarchy of Substitute Decision Makers in the Health Care Consent Act, s.20.1. 1 page. Last reviewed June 2019 |
| My Health, My Wishes. My Substitute Decision Maker (SDM) A Substitute Decision-Maker (SDM) is a person who will make health and personal care decisions for you. An SDM will only make decisions for you if you are found mentally incapable of making them for yourself. This brochure will help you understand the process of identifying or naming an SDM. 2 pages. Last reviewed December 2019 |
| Myth Busting: Consent and Capacity This newsletter style handout dispels common myths about Consent and Capacity in the Long-term Care home setting and provides a list of helpful resources. 2 pages. Last reviewed December 2019. |
| Substitute Decision Maker Consent Form: Ontario Patient Ombudsman This form addresses collection, use and disclosure of personal information and personal health information under the Personal Health Information Protection Act, 2004; the of Information and Protection of Privacy Act, and the Municipal Freedom of Information and Protection of Privacy Act. |
| Substitute Decision Maker Wallet Card This two sided, folded wallet card is designed to help people understand the process of Advance Care Planning in Ontario as well as provide a convenient way to keep your Substitute Decision Maker information easily available. 1 page. Last reviewed January 2020. |
PRESENTATIONS
| Consent, Capacity, Questions? This is a pdf copy of a presentation given by Mark Handelman for the Frontenac-Kingston Council on Aging about important considerations regarding capacity, consent and CCB hearings. Mark is one of Ontario’s first members of the official Guardian Child Representation Program. Mark was appointed to the Consent & Capacity Board in 1998 and became a vice chair and senior lawyer member in 2000. He is also a lawyer member of the Ontario Human Rights Tribunal and a member of the Law Commission of Ontario Advisory Committee on end of life decisions. 61 slides. Last reviewed December 2019. |
| Health Care Consent and Advance Care Planning – Getting it Right PUBLIC WORKSHOP This presentation by Judith Wahl is about Advance Care Planning in Ontario. She talks about identifying your substitute decision maker and how to have a conversation about what is important to you. 78 slides. Last reviewed December 2019. |
PUBLICATIONS
| Common Misconceptions About the Substitute Decisions Act and Health Care Consent Act This paper focuses on common misconceptions or misunderstandings about the Substitute Decisions Act (SDA) and the Health Care Consent Act (HCCA). 24 pages. Last reviewed June 2019. |
| Advance Care Planning and End of Life Decision-Making: More than Just Documents Judith Wahl outlines common problems related to confusion about Advance Care Planning (ACP) and End-of-Life Decision-Making and how ACP is more about communication between patients and their Substitute Decision Maker and any paperwork. 3 pages. Last reviewed June 2019. |
| Improving End-of-Life Communication and Decision-Making in Ontario This brief was produced by the McMaster Health Forum to serve as the basis for discussions by the citizen panel on how to improve end-of-life communication and decision-making in Ontario. This brief includes information on end-of-life communication including what is known about: the underlying problem; three possible options to address the problem; and potential barriers and facilitators to implementing these options. 31 pages. Last reviewed June 2019. |
VIDEOS
| Advance Care Planning – Conversations This video reinforces the importance of Advance Care Planning. Patients and health care professionals share their opinions and advice. Last reviewed June 2019. |
| Advance Care Planning in Ontario This video starts the conversation about advance care planning (ACP), consent to treatment, and those who are involved in ACP. For more information, visit Speak Up Ontario’s website by clicking here. Last reviewed June 2019. |
| Capacity to Consent to Treatment This webinar discussed capacity to consent for treatment for people with communication disabilities. This webinar was held on May 18, 2016 and is brought to you by Communication Disabilities Access Canada and is made possible through funding from The Law Foundation of Ontario. For more information, you can visit http://cdacanada.com. Last reviewed December 2019. |
| Comprendre les Notions de Consentement et de Capacité en Ontario Cette vidéo explique la loi en Ontario qui exige que tous les professionnels de la santé obtiennent un consentement éclairé (ou un refus) avant d’administrer un traitement ou des soins. La capacité mentale peut varier le type de décision à prendre, à chaque nouvelle décision. Apprenez-en davanatge sur le consentement, la planification préalable des soins et le rôle de mandataire à www.planificationprealable.ca. |
| Confirming Your Substitute Decision Maker in Ontario This video explains who is a substitute decision maker (SDM) in Ontario. For more information, visit Speak Up Ontario’s website by clicking here. Last reviewed June 2019. |
| End of Life Care with Daren Heyland This short video features Dr. Daren Heyland talking about end of life care and the importance of having end of life and Advance Care Planning conversations. The CANHELP tool is briefly described. Last reviewed June 2019 |
| I’m a Substitute Decision Maker… What now? This video explains the role of a substitute decision maker in Ontario. For more information, visit Speak Up Ontario’s website by clicking here. Last reviewed June 2019. |
| Je Suis Mandataire…Que Dois-Je Faire? Cette vidéo explique le rôle de mandataire en Ontario. Vous voulez en savoir davanatge? Informez-vous sur le rôle de mandataire à www.planificationprealable.ca. |
| La Désignation de Votre Mandataire en Ontario Cette vidéo explique qui est un mandataire en Ontario. Apprenez-en davantage sur la désignation de mandataires à www.planificationprealable.ca. |
| Ontario Consent and Capacity Board – Mock Hearings This webpage provides downloadable videos and pdf toolkits on the topics of mock hearings for admission to care facilities; to determine patient capacity to make psychiatric treatment decisions, and for applications to determine compliance with principles of substitute decision making. You will need windows media player to play the videos. Last reviewed June 2019. |
| Planification Préalable des Soins en Ontario Cette vidéo commence la conversation sur la planification préalable des soins, le consentement au traitement et les personnes impliquées. Apprenez-en davantage sur la planification préalable des soins à www.planificationprealable.ca. |
| Substitute Decision Making This webinar discussed substitute decision making for people with communication disabilities. This webinar was held on May 25, 2016 and is brought to you by Communication Disabilities Access Canada and is made possible through funding from The Law Foundation of Ontario. For more information, you can visit http://cdacanada.com. Last reviewed December 2019. |
| Understanding Consent & Capacity in Ontario This video explains the law in Ontario that requires all health care providers to get informed consent or refusal of consent before providing a patient with any treatment or care. Mental capacity is specific for each type of decision and for each new decision. For more information, visit Speak Up Ontario’s website by clicking here. Last reviewed June 2019. |
| What is Your Role in Healthcare Decision-Making in Ontario This short video describes the Health Care Consent Act in Ontario and the role and importance of a Substitute Decision Maker. Last reviewed June 2019. |
WEBSITES
| Advance Care Planning – Ontario This site offers a wide range of resources and information, including handouts, guides and educational resources for older adults and their caregivers . |
| Advance Care Planning Publications ACE has listed resources and other related information to assist in Advance Care Planning and Health Care Consent. |
| Capacity and Consent – Southeasthealthline.ca This website provides important helpful information about Capacity and Consent for those living in South East Ontario. |
| Consent and Capacity Board – Resources This FAQ page describes and outlines the process for accessing the Capacity Board and has many links embedded. |
| Law Commission of Ontario This webpage features the LCO’s resources related to their “Last Stages of Life” project. |
ACP & HCC RESOURCES FOR HEALTH CARE PROVIDERS
The project developed a comprehensive collection of resources focusing on Advance Care Planning [ACP] and Health Care Consent [HCC] that are pertinent to practice of health care providers in Ontario. These resources are generally informed by research studies, externally reviewed by experts and then adopted as a part of a framework to support health care providers in guiding patients through the Advance Care Planning process. Resources available include: Decision Supports, Guidelines, Handouts, Presentations, Publications, Videos and Websites.
DECISION SUPPORTS
| Cardio-Pulmonary Resuscitation (CPR): A Decision Aid for Patients and Their Families This CPR decision aid was developed by Dr.’s Daren Heyland and Chris Frank and provides answers to frequently asked questions along with supporting statistical evidence. 8 pages. Last reviewed June 2019. |
| Long Term Tube Feeding: A Guide for Patients and Substitute Decision Makers This guide is intended to provide the necessary information for patients and Substitute Decision Makers to make informed decisions regarding tube feeding. It reviews commonly asked questions and easy to understand answers. 8 pages. Last reviewed June 2019. |
GUIDELINES
| A Practical Guide to Mental Health and the Law in Ontario This toolkit was produced for use of the Ontario Hospital Association and is intended to provide health care professionals with a general understanding of mental health law issues with an overview of the legislation that governs the provision of mental health in Ontario. It should not be used in place of legal advice. It does describe key legislation such as the Mental Health Act, Health Care Consent Act, Substitute Decisions Act and the Personal Health Information Protection Act. It reviews the issues of consent to treat and determining capacity to consent and the role of Substitute Decision Makers. 157 pages. Last reviewed June 2019. |
| Health Care Consent and Advance Care Planning (ACP) Guidelines Template This template is developed for institutions to assist in creating or updating their Health Care Consent (HCC) and Advance Care Planning (ACP) Policy. It provides important information to consider.12 pages. Last reviewed June 2019. |
| Informed Consent in Adults with Developmental Disabilities (DD) This guide describes the steps involved in the consent process as they relate in particular with people with developmental disabilities. 17 pages. Last reviewed June 2019. |
HANDBOOKS
| Advance Care Planning Ontario – Resources for Families – 5 Steps of Advance Care Planning This online resource describes the process of starting Advance Care Planning |
| Advance Care Planning Ontario – Online Workbook for Families This english online Advance Care Planning workbook is intended for personal use for Ontario residents. Note that once the family has completed the online workbook, there is an option to request a print version. |
| Ontario Power of Attorney for Personal Care This pdf booklet contains step by step instructions for completing the enclosed Power of Attorney for Personal Care form. 2 pages. Last reviewed June 2019. |
HANDOUTS
| Advance Care Planning – Ontario – Summary – Health Care Consent Act This handout describes what Advance Care Planning is in Ontario as well as the role of the Substitute Decision Maker and Health Practitioners in regards to Health Care Consent. 1 page. Last reviewed June 2019. |
| Advance Care Planning and Health Care Consent in Ontario: Common Questions and Answers This pdf handout is intended as a helpful resource to address commonly asked questions and answers related to Advance Care Planning and Health Care Consent in Ontario. A number of relevant resources are linked to in order to provide more in depth information. 5 pages. Last reviewed June 2019. |
| Important Things to Know About Advance Care Planning (ACP) & Health Care Consent (HCC) in Ontario This handout provides an overview of the Advance Care Planning process in Ontario as well as the hierarchy of Substitute Decision Makers in the Health Care Consent Act, s.20.1. 1 page. Last reviewed June 2019 |
| Leadership in Advance Care Planning in Ontario This document is intended as an informative guide to performing a leadership role in the health care system in Ontario regarding the topics of Health Care Consent and Advance Care Planning. 4 pages. Last reviewed June 2019. |
| Making Decisions About Your Care This resource for Ontarians is intended to support individuals with a life-limiting illness and discusses advance care planning, goals of care, treatment decisions and informed consent. The online resource provides information on all these aspects of planning care along with a Documentation Template [downloadable PDF] |
| Advance Care Planning: Substitute Decision Makers [SDM] This section of the Advance Care Planning Ontario site provides information for both the individual who is choosing an SDM as well as a person who is being asked to be an SDM. Resources include a link to a link that enables a person to complete the online Substitute Decision Maker Card form and access a printed version of the card as part of the ACP Handbook. |
| Myth Busting: Consent and Capacity This newsletter style handout dispels common myths about Consent and Capacity in the Long-term Care home setting and provides a list of helpful resources. 2 pages. Last reviewed December 2019. |
| Substitute Decision Maker Consent Form: Ontario Patient Ombudsman This form addresses collection, use and disclosure of personal information and personal health information under the Personal Health Information Protection Act, 2004; the of Information and Protection of Privacy Act, and the Municipal Freedom of Information and Protection of Privacy Act. |
| Substitute Decision Maker Wallet Card This two sided, folded wallet card is designed to help people understand the process of Advance Care Planning in Ontario as well as provide a convenient way to keep your Substitute Decision Maker information easily available. 1 page. Last reviewed January 2020. |
| Tip Sheet #1: Health Care Consent and Advance Care Planning: The Basics This tip sheet provides details about the Health Care Consent Act (HCCA) and Advance Care Planning in Ontario. The roles of the health care practitioner, substitute decision maker and patient are outlined. “Best interests” are defined as set out by the HCCA. 6 pages. Last reviewed June 2019. |
| Tip Sheet #2: Hierarchy of Substitute Decision Makers (SDMs) in the Health Care Consent Act This tip sheet reviews the requirements for informed consent and the hierarchy of Substitute Decision Makers (SDM) listed in the Health Care Consent Act (Ontario). Requirements of SDM as per the HCCA s.20 are outlined. 8 pages. Last reviewed June 2019. |
| Tool on Capacity & Consent This 2 part tool describes in summary the main points related to 1. Consent to Treatment and 2. Decisional Mental Capacity and Capacity Assessment specifically in Ontario. 2 pages. Last reviewed June 2019. |
| Who Assesses Capacity Under What Circumstances? This document provides contextual answers as to who assesses capacity in Ontario. 3 pages. Last reviewed June 2019. |
PRESENTATIONS
| Advance Care Planning This presentation was given at a CCAC Conference in 2014, focused on Advance Care Planning (ACP) and Health Care Consent (HCC) in Ontario and especially prepared for CBI Health Group. It introduces the topics, the Ontario context, recognized need for ACP, National Hospice Palliative Care statistics and an overview of an ACP toolkit. 6 pages. Last reviewed June 2019. |
| Advance Care Planning in Relation to Health Care Consent, Information Session for a Public Presentation This facilitator guide which is intended to assist users to prepare a presentation on Advance Care Planning and Health Care Consent for the general public. 15 pages. Last reviewed June 2019. |
| Consent, Capacity & Substitute Decision- Making Ontario This presentation on Consent, Capacity and Substitute Decision Making gives an overview on the various legislative acts that form the underpinning to Advance Care Planning and Health Care Consent in Ontario. 54 slides. Last reviewed June 2019. |
| Consent, Capacity, Questions? This is a pdf copy of a presentation given by Mark Handelman for the Frontenac-Kingston Council on Aging about important considerations regarding capacity, consent and CCB hearings. Mark is one of Ontario’s first members of the official Guardian Child Representation Program. Mark was appointed to the Consent & Capacity Board in 1998 and became a vice chair and senior lawyer member in 2000. He is also a lawyer member of the Ontario Human Rights Tribunal and a member of the Law Commission of Ontario Advisory Committee on end of life decisions. 61 slides. Last reviewed December 2019. |
| Health Care Consent and Advance Care Planning – Long Term Care and Hospitals: The BASICS That you NEED to Know This presentation is about the basics about Health Care Consent and Advance Care Planning and who is the decision maker for health care; the resident or the residents’ Substitute Decision Maker and why. As well you will discover what Capacity to make a treatment decision means and who determines if a resident is mentally capable. 34 pages. Last reviewed June 2019. |
| Health Care Consent and Advance Care Planning – The BASICS That you NEED to Know – Community Care This presentation by Judith Wahl gives an overview of key points about Advance Care Planning and Health Care Consent in an Ontario community care setting. 29 pages. Last reviewed June 2019. |
| Health Care Consent and Advance Care Planning in the Acute Care / Primary Care Sector: The BASICS That you NEED to Know This presentation given by Judith Wahl is intended to provide an overview of the key facts related to Health Care Consent and Advance Care Planning in the Ontario context of acute and primary care settings. 29 pages. Last reviewed June 2019. |
| Health Care Consent Presentation Slides This presentation provides the reader with a series of topics related to consent and capacity. 60 slides. Last reviewed June 2019. |
| The Consent and Capacity Board: Consent, Capacity and Substitute Decision Making This presentation by Michael Newman objectives included: to identify the Consent and Capacity Board, explain when and how to access the Consent and Capacity Board, identify the legal test for capacity and substitute decision making, identify various types of Board applications as well as identify means of obtaining more information. The presentation is not intended as legal advice but for information purposes only. 93 slides. Last reviewed June 2019. |
| Treatment Capacity and Substitute Decision Makers The presentation by Laurie Borland the Office of the Public Guardian and Trustee outlines the rules for Substitute Decision-Making in Ontario. 19 slides. Last reviewed June 2019. |
PUBLICATIONS
| Common Misconceptions About the Substitute Decisions Act and Health Care Consent Act This paper focuses on common misconceptions or misunderstandings about the Substitute Decisions Act (SDA) and the Health Care Consent Act (HCCA). 24 pages. Last reviewed June 2019. |
| Advance Care Planning and End of Life Decision-Making: More than Just Documents Judith Wahl outlines common problems related to confusion about Advance Care Planning (ACP) and End-of-Life Decision-Making and how ACP is more about communication between patients and their Substitute Decision Maker and any paperwork. 3 pages. Last reviewed June 2019. |
| Capacity and Informed Consent to Treatment (Ontario) This section describes the general law of consent to treatment, capacity with respect to treatment decisions, and substitute decision-making in Ontario. Last reviewed June 2019. |
| Consent and Capacity From Ontario Human Rights Commission “Policy on preventing discrimination based on mental health disabilities and addictions.” This chapter focuses on the complexity of capacity and consent as it relates to mental health. Last reviewed June 2019. |
| Consent to Treatment The purpose of this page is to clarify when and how a physician can obtain a patient’s consent to treatment and what constitutes consent. Last reviewed June 2019. |
| Health Care Consent Act, 1996, S.O. 1996, c. 2, Sched. A Government of Ontario law regarding Health Care Consent. Last reviewed June 2019. |
| Health Care Consent and Advance Care Planning: Fairly Good Law and Good Intent, but Not Always Good Practice Judith Wahl reviews the law in Ontario regarding Health Care Consent and Advance Care Planning and how health care practice is not always aligning with what has been legislated. 27 pages. Last reviewed June 2019. |
| Health Care Consent, Advance Care Planning, and Goals of Care Practice Tools: The Challenge to get it Right This research paper reviews the legal framework within Ontario, positioning Advance Care Planning (ACP), Goals of Care (GOC) and Health Care Consent (HCC) as part of the person-centred decision making process. It also clarifies the linkages between informed consent, ACP and GOC, highlighting the connections to the Health Care Consent Act. 91 pages. Last reviewed June 2019. |
| Improving End-of-Life Communication and Decision-Making in Ontario This brief was produced by the McMaster Health Forum to serve as the basis for discussions by the citizen panel on how to improve end-of-life communication and decision-making in Ontario. This brief includes information on end-of-life communication including what is known about: the underlying problem; three possible options to address the problem; and potential barriers and facilitators to implementing these options. 31 pages. Last reviewed June 2019. |
| Palliative Care: Care for Adults With a Progressive, Life-Limiting Illness This quality standard from Health Quality Ontario, addresses palliative care for people who are living with a serious, life-limiting illness, and for their family and caregivers. The goal of palliative care is to relieve pain and suffering, and to improve a person’s quality of life. This quality standard focuses on care for people in all settings, including home and community, hospice, hospital, and long-term care. 68 pages. Last reviewed June 2019. |
VIDEOS
| Advance Care Planning – Conversations This video reinforces the importance of Advance Care Planning. Patients and health care professionals share their opinions and advice. Last reviewed June 2019. |
| Advance Care Planning and Health Care Consent in Ontario: Making Your Wishes Known This video of an education session presented by Carol Sloan, RN was designed for health service providers and educators. The importance of advance care planning and health care consent are discussed as well as relevant Ontario specific resources. Last reviewed June 2019. |
| Capacity to Consent to Treatment This webinar discussed capacity to consent for treatment for people with communication disabilities. This webinar was held on May 18, 2016 and is brought to you by Communication Disabilities Access Canada and is made possible through funding from The Law Foundation of Ontario. For more information, you can visit http://cdacanada.com. Last reviewed December 2019. |
| Comprendre les Notions de Consentement et de Capacité en Ontario Cette vidéo explique la loi en Ontario qui exige que tous les professionnels de la santé obtiennent un consentement éclairé (ou un refus) avant d’administrer un traitement ou des soins. La capacité mentale peut varier le type de décision à prendre, à chaque nouvelle décision. Apprenez-en davanatge sur le consentement, la planification préalable des soins et le rôle de mandataire à www.planificationprealable.ca. |
| Health Care Consent in Relation to Advance Care Planning for Health Care Providers This video is of an information session provided to health care providers on Health Care Consent in the context of Advance Care Planning in Ontario. |
| Health Care Consent and Advance Care Planning: Getting it Right in Ontario for Health Practitioners This video is of a presentation provided by Brendan Gray of the Advocacy Centre for the Elderly where he discusses what health care consent and advance care planning are as well as best practices for health practitioners. |
| Ontario Consent and Capacity Board – Mock Hearings This webpage provides downloadable videos and pdf toolkits on the topics of mock hearings for admission to care facilities; to determine patient capacity to make psychiatric treatment decisions, and for applications to determine compliance with principles of substitute decision making. You will need windows media player to play the videos. Last reviewed June 2019. |
| Planification Préalable des Soins en Ontario Cette vidéo commence la conversation sur la planification préalable des soins, le consentement au traitement et les personnes impliquées. Apprenez-en davantage sur la planification préalable des soins à www.planificationprealable.ca. |
| Speak Up Ontario: Train the Trainer This video is of a presentation intended to provide the viewer with practical ways to promote advance care planning in your community. It presents “Advance Care Planning 101”, why it is important, what it is and what it isn’t. The Speak Up Ontario campaign is introduced and suggestions for becoming and ACP champion in your community are included. |
| Substitute Decision Making This webinar discussed substitute decision making for people with communication disabilities. This webinar was held on May 25, 2016 and is brought to you by Communication Disabilities Access Canada and is made possible through funding from The Law Foundation of Ontario. For more information, you can visit http://cdacanada.com. Last reviewed December 2019. |
WEBSITES
| Advance Care Planning Publications ACE has listed resources and other related information to assist in Advance Care Planning and Health Care Consent. |
| I Have Been Asked to be a Substitute Decision Maker (SDM) in Ontario, What Does That Mean? This brochure is intended to explain the role and importance of being a Substitute Decision Maker in Ontario. 2 pages. Last reviewed June 2019. |
| Advance Care Planning: Power of Attorney for Personal Care [POA] This online resource explains the difference between the roles of Power of Attorney for Personal Care and a Substitute Decision Maker (SDM), including explaining why you might need a person to fill this role and when. |
| Capacity and Consent – Southeasthealthline.ca This website provides important helpful information about Capacity and Consent for those living in South East Ontario. |
| Consent and Capacity Board This FAQ page describes and outlines the process for accessing the Capacity Board and has many links embedded. |
| Law Commission of Ontario This webpage features the LCO’s resources related to their “Last Stages of Life” project. |
| Advance Care Planning Ontario This website shares Ontario specific resources for a variety of audiences, including health promotion materials. |
| HCPO: Advance Care Planning for Health Care Professionals This website shares information covering Advance Care Planning, including a Physician Guide to ACP and SDM as well as online Learning Modules |
ACP & HCC EDUCATION
A range of educational resources that support the practice of Advance Care Planning and the understanding of Health Care Consent are available. There are Online Courses and other tools that are geared towards different audiences.
EDUCATION
| Advance Care Planning Conversation Guide: Clinician Primer Read this primer to learn about: how to prepare for Advance Care Planning (ACP) conversations with patients and Substitute Decision-Makers (SDMs) and practical information on: consent, capacity and decision-making, how to determine who the automatic SDM is for a patient and finally how to prepare SDMs for decision making about healthcare in the future. 16 pages. Last reviewed June 2019. |
| An Advance Care Planning Primer and Practical Approaches for Healthcare Providers This online course developed by the East Toronto Health Link (ETHeL) ACP Working Croup and Clinical Advisory Council consists of 4 modules about Advance Care Planning and covers what providers should know and do, what patients need to know and do and how to initiate ACP conversations. |
ACP & HCC KNOWLEDGE EXCHANGE
This section will link you to knowledge exchange information and networking opportunities such as contacting a Community of Practice (CoP), Research, Conferences, Presentations & Webinars and Newsletters.
COMMUNITY OF PRACTICE
| Health Care Consent & Advance Care Planning Community of Practice Hospice Palliative Care Ontario is leading the Health Care Consent and Advance Care Planning Community of Practice (HCC ACP CoP) and are calling for members to come forth from across Ontario. Please see the pdf document for a copy of this groups Terms of Reference.If you are interested in becoming a member of this Community of Practice to enhance and assist in provincial initiatives supporting Advance Care Planning and Health Care Consent, please register at http://fluidsurveys.com/s/hpco-hcc-acp-cop/If you have any further questions or would like any support from the HCC ACP CoP to help advance this work within your organization or practice, please feel free to contact Julie Darnay at jdarnay@hpco.ca. |
RESEARCH
| Health Care Consent and Advance Care Planning in Ontario The Law Commission of Ontario (LCO) commissioned this paper to provide background research for its Legal Capacity, Decision‐Making and Guardianship project. The views expressed in this paper do not necessarily reflect the views of the LCO. 322 pages. Last reviewed June 2019. |
| Health Care Consent, Advance Care Planning, and Goals of Care Practice Tools: The Challenge to get it Right This research paper reviews the legal framework within Ontario, positioning Advance Care Planning (ACP), Goals of Care (GOC) and Health Care Consent (HCC) as part of the person-centred decision making process. It also clarifies the linkages between informed consent, ACP and GOC, highlighting the connections to the Health Care Consent Act. 91 pages. Last reviewed June 2019. |
| Research Paper for the Law Commission of Ontario: Health Care Consent and Advance Care Planning in Ontario This is an executive summary that focuses on the interrelationship between health care consent and advance care planning under Ontario law, and on related misconceptions of health practitioners and health care organizations. At common law and under Ontario legislation, informed consent is required before a health practitioner can provide treatment to a patient. Importantly, where a patient is found incapable, the requirement to obtain informed consent is not abrogated, but instead the informed consent is obtained from communications with substitute decision makers (SDMs). Last reviewed June 2019. |
CONFERENCES, PRESENTATIONS, WEBINARS
| Leading by Example in a Team Based World April 26-28, 2020 at the Sheraton Parkway Toronto North Hotel & Suites, Richmond Hill, Ontario. This three day conference is intended for thought leaders, service providers, health system planners, researchers, policy makers, administrators, front-line practitioners and volunteers from across the healthcare spectrum to collaborate, network and integrate hospice palliative care in all settings. To learn more or to register click here. |
NEWSLETTERS
| Hospice Palliative Care Ontario’s Newsletter This newsletter is intended to inform and inspire by providing news, resources and information to support hospice palliative care in Ontario. |